Celebrating Caregivers as Care Champions
2024 Speaker Details
Darra Wray
Keynote: The Power of We
Tiffany Robb
Morning Breakout Session: ADRD Program (Update on Progress in Idaho)
Jen Grush-Dale
Pete Gonzales
Morning Breakout Session: Centers for Independent Living
Steven Millward
Morning Breakout Session: Certified Family Homes in Idaho
Leslee Blanch
Morning Breakout Session: Embracing Gratitude
Charlye Hahn
Heidi Smith
Jessica Gross
Morning Breakout Session: Kinship Care Panel
Amy Yardley
Morning Breakout Session: Managing Big Behaviors in Little Children (Brain Based Strategies That Work)
Alexandra Fernandez
Helen Mayberry
Morning Breakout Session: Medicare and Medicaid
Alexandra (Ali) Fernández is the Bureau Chief for the Bureau of Long Term Care under the Division of Medicaid. She has spent her career working for programs that support individuals with disabilities and the aging population, from direct service to policy analysis and program implementation.
Karen Kouba
Morning Breakout Session: Self-Care for Caregivers (Create Your Personal Owner’s Manual)
Lee Flinn
Morning Breakout Session: 988 – 24/7 Support for Caregivers
Anne Kenny
Darra Wray
Dee Childers
Morning Breakout Session: Winning Strategies Panel
Megan Brandel
Sarah Gornik
Short Film Viewing and Discussion: The Power of Movement and Music (Open Arms Dance Project)
Jackie Frey
Megan Schomer
Sarah Gornik
Panel Discussion: Emergency Preparedness for Caregivers
Natalie Nathan
Rachael Bazzett
Panel Discussion: Intricacies of Intimacy
Anne Abbott
Megan Smith
Afternoon Breakout Session: Communities for Youth (Youth Mental Health Crisis Prevention)
Jayne Josephson
Afternoon Breakout Session: Consumer/Caregiver-Driven Transitions
Brooke Fukuoka, DMD, FSCD
Afternoon Breakout Session: Dental Care of Individuals Who Have Disabilities
Christine Pisani
David Lehman
Jeremy Maxand
Afternoon Breakout Session: Direct Care Workforce
Christine started at the Idaho Council on Developmental Disabilities in 1996 and has been the Executive Director for the past decade. Her work at the Council presents opportunities to work directly with people with intellectual and developmental disabilities, family members, and policymakers statewide. Her work includes leadership development, service system redesign, voting rights advocacy and education, and federal and state legislative policy. Christine holds a Master of Education degree in Special Education with an emphasis in public policy from the University of Idaho. She is also a graduate of the State of Idaho’s Certified Public Management program. In her spare time, she enjoys spending time with her two adult daughters, her Golden Retriever Hazel, time in the garden, and backpacking the beautiful areas of the Pacific northwest.
Tiffany Robb
Afternoon Breakout Session: Idaho Dementia (A Workbook for Family Caregivers)
Jill Harris
Afternoon Breakout Session: Just Keep Moving
Sheldon Forehand
Afternoon Breakout Session: Mediation for Managing Contentious Family Dynamics
JoEllen Watson
Afternoon Breakout Session: Recovering from Emotional Pain of Loss
Barbara Bisaro
Julie Torresani
Megan Schomer
Afternoon Breakout Session: Respite: Where Can I Find It?
Description: Join us for a panel discussion about finding available respite options and services in your area. Megan Schomer, President and CEO for Rays for Rare, will discuss respite options for medically fragile children. Barbara Bisaro and Julie Torresani, Area Agency on Aging, will discuss different service options that your local Area Agency on Aging may offer such as in-home respite, adult day respite, consumer directed respite, and other resources to provide a break for both the caregiver and care recipient.
Biography:
Megan Schomer was given the vision for Rays for Rare (formerly Corwyn’s Cause) in 2016 after experiencing the loss of her medically fragile son Corwyn. Her son Corwyn was born with a rare brain malformation, which had a catastrophic effect on his health. He had many complications from epilepsy to regular occurrences of pneumonia and was unable to walk, talk or eat, essentially there was a pediatric intensive care unit in her home. Megan realized during her years of caring for Corwyn how isolating the experience was, while many charitable organizations bring support to the hospital, the families with complex children do most of the cares at home. After Corwyn passed away at home, Megan decided to bring uplifting support to medically fragile children and their families. Her vision included being a non-diagnosis specific organization, showing up with practical support at the families’ homes in the form of services and building community through events.
Megan additionally advocates for rare diseases, in which there are more than 7,000. She feels it doesn’t matter what the diagnosis is, the journey is similar. She has found this population to be the most underserved in our curative culture and has brought together a unified voice to advocate for pediatric palliative care, hospice and better policies.
She currently serves on the Children’s Palliative Advisory Council at St. Luke’s Children’s Hospital as well as shares her message at speaking engagements to further awareness. In 2019 she ended her 15-year career as a top producer in the real estate industry to become the President and CEO of Rays for Rare. Her career in real estate and previous experience in corporate management give her a dynamic skill set to further and grow this multifaceted organization. Megan lives in Eagle Idaho with her son, she enjoys anything adventurous from travel, dining and experiences to exploring our beautiful state.